Researchers of a survey-based study in the United States involving 162 caregivers, highlight the profound impact of tardive dyskinesia (TD) on patients across physical, psychological, and social domains, with over 80% of caregivers reporting severe impact. Additionally, caregivers experience significant burden, with TD-related caregiving tasks affecting their psychological well-being, daily activities, and professional lives. Caregivers, particularly those of patients with more severe TD symptoms, report feelings of anxiety, sadness, and being overwhelmed. The impact on caregivers’ work productivity is notable, with high levels of presenteeism and overall work impairment reported.

Overall, the study underscores the need for healthcare professionals to recognize and address caregiver burden in the context of TD, emphasizing the importance of holistic care approaches that support both patients and their caregivers.

Reference: Jain R, Ayyagari R, Goldschmidt D, Zhou M, Finkbeiner S, Leo S. Impact of tardive dyskinesia on patients and caregivers: a survey of caregivers in the United States. J Patient Rep Outcomes. 2023;7(1):122. doi: 10.1186/s41687-023-00658-9.